PLEASE KNOW I AM NOT A DOCTOR NOR DO I GIVE MEDICAL ADVISE. I AM SIMPLY A SUFFERER WHO WANTS TO SHARE WHAT I LEARNED ABOUT MY INVISABLE ILLNESSES. I WILL NEVER GIVE RECOMENDATIONS ON MEDICATION BUT SHARE WHAT I HAVE USED THROUGH THE YEARS.
Well I wanted to take a little time to talk about fibromyalgia. I am a definite suffer a fibro amongst other things but let’s keep on point. As we get to know each other you’ll notice that I’m easily thrown off track. All part of the whole memory issues that come with fibromyalgia.
Now for those of you who have a loved one or those of you that have fibromyalgia and doctors don’t believe you or maybe you have fibro but don’t know the general definition of it I’d like to give you an idea what I’ve learned about Fibromyalgia.
In my experience & research I’ve found Fibromyalgia is a pain that moves around your body. It picks a spot, you feel some intense pain, supposedly it will “just pass” and then it will just move to another spot. Now I can attest to this because I have pain all over. Most recently it has settled in my knee and it didn’t just pick the spot and then a few hours later it went away. But at times can pass. But for me, it just goes elsewhere and if it doesn’t pass it goes elsewhere and then also just stays put with its other buddies in my body😡.
Now you can try to pretend that you’re not hurting and you can try to cry it out or just cry because you hurt, I’ve done it all. But I’ve learned that we have to learn how to live with this pain. Don’t get me wrong for some of you that are reading this, I get it. The pain is real, the pain is there and the pain is not in your mind. It takes your pain to places you never thought possible. I’d like to also add that fibromyalgia is commonly known mostly for women, but I’d like to share that there are a percentage of men that do suffer from fibromyalgia. So I don’t want to discount any of my male readers. This is not only for women it’s for everybody who suffers from this debilitating disease or relatable Invisable Illnesses.😥
Until I started really researching fibromyalgia I couldn’t understand why am I so tired why can’t I sleep? Why do I all of a sudden feel a surge of energy where I can do so much within a couple of hours but then I pay for it so badly later. Going to do something even fun and recreational can keep me down for a good week. Sometimes you feel numb you can’t stand being in the cold (this doesn’t happen for me, I am always hot) or the worst is when your muscles get in a knot, my fingers get into a horrible twisted painful situation that feels like someone banged them or slammed them in the door on accident or something. The wonderful thing, and I say this in a sarcastic way hahaha, is you get headaches. I suffer from migraines so it’s a double whammy. A lot of times you fantasize and you run away in music and that’s something I do. Music is a huge part of my life. I used to watch a ton of TV, I still do but I’ve started noticing that music is playing a bigger part in my life then before. So if you suffer from these things just know you’re not alone.
One thing to remember and maybe people who have a loved one who suffers from fibromyalgia that’s very very debilitating for them is please be patient and know that sometimes these flare-ups do not last a couple of hours or for the day they can last a week several weeks and sometimes it’s a month or more. That’s where depression can come in but that’s on another day I’ll discuss that.
One of the things is I’ve gone to many doctors and I tell you there are so many that don’t believe in this illness. But I don’t want you to be frustrated because there will be one they will believe you. And furthermore those friends and family who mean well need to understand that our Invisible Illness(s) is more real than their imaginary medical expertise.
I also want to say to those who like to give the dirty looks to someone in their 20s 30s 40s, I personally am 54, and have a disability placard for parking, that not every disability is visible. You need to be kind. You never know what kind of struggle a person is going through. You’re a stranger to us, we don’t need a stranger judging us. We get enough of that thank you very much.
Another aspect of fibromyalgia and I guess you can say myths about it is it people think we’re lazy. Just because I have fibromyalgia it doesn’t mean I don’t take care of myself it doesn’t mean I don’t want to exercise and I’m not making up any symptoms. What it means is I push myself constantly and really don’t want to live this way but I don’t have a choice. 🤷♀️
So rather than let people beat me down like I have in the past, I’ve decided to stand up hold my head up high and say if you don’t believe me I’m okay with that.😤 I just don’t want your medical advice.🤐 I don’t want to hear about your cousin that has fibro and works 72 hours a week. 🤐
I don’t know if any of you’ve encountered this but I know that one day I went to the eye doctor. Mind you, I had canceled a few appointments due to fibro flare. It seems to settle in my feet a lot which by the way, yes fibro can get in your feet. In any event, I made it to my appointment finally 🤗 and the assistant to the doctor was doing her little PreCheck up thing and I’m an extremely friendly person, pain or no pain, depression or no depression (I feel like I’m a great pretender to the outside world😎) I try to give the best of myself, and I apologized about missing my appointments and that I suffer from fibromyalgia and it’s very debilitating at times. And on top of that (which is another topic for later) but just so you know I suffer from nerve damage, from a surgery gone wrong (surgery had nothing to do with my back!). So I briefly said that to her and I had a flare up and just could not make it. It’s very up-and-down for me to try to make plans or anyting. In any event she told me “oh I have fibromyalgia too! But I work 40 hours.🙄 I just push through it and I exercise🏃♀️ and I do so much with stretching and eating right🤐(meanwhile I am telling myself “dont throw your sandal at her, don’t be rude or inconsiderate😖) I’m assuming she threw in the eating right part because yes, I’m a little overweight. Do I like it? No! Would I like to change it? Heck yeah, everyday I try to change it. You’d be surprised at the minimal calories I do eat. But as any who have suffered from this well know medication side affects can be brutal. Those lovely side effects, ahh, yes. Not everyone has problems with weight gain, but please note, to some it does.😎
Well as previously mentioned I went off track. Well after she told me that she had fibromyalgia I explained to her that I was very happy that her fibro was not as severe is mine and that I did have a surgery & in most sufferers I have spoken with as well as my doctors who believe me, trauma to your body will make your fibromyalgia worse. Yes, this I learned the hard way. Again for another day to explain this.
Well she just wanted to act like she was superior to me, which hey if you know so much about Fibromyalgia, power to you👏👌, but if you did know so much about it then you would know that there are people like me who suffer so badly that getting up and taking a shower was the biggest accomplishment of the day🤸♀️. But no, she was in Tip-Top shape and as the doctor came in and started to examine me she started doing squats in front of me🤣. I tell you🙃. It took everything in me not to crack up completely.🤣😂 So if you’re out there my little eye examine assistant and you’re reading this, if you feel you have fibromyalgia or the doctor told you that you have fibromyalgia do a little research. Listen to what others have said about it. Join some blogs. Because that’s what I did. Take note that there any many levels that people suffer.
When I first found out I had fibromyalgia I too was in much better physical health and weight and my energy was great. But I had a great trauma in 2010 and I’ve never been the same. It was life-changing. So my friends out there that suffer, I’m here. I love to listen, and I love to talk and encourage. I take this blog very serious in teaching or enlightening about people who suffer from invisible illnesses.
Fibromyalgia is just one of them and today is Thursday & I’m surprosed to go out tonight, but don’t think I’ll make it. Yeah I’m in pain but I take great joy and being able to help somebody else not feel alone in their pain.💜🌷
I hope I’ve explained fibromyalgia sprinkled heavily with my life 😂. If I’ve missed anything please chime in. I’m always willing to learn more, always wanting to learn more. So you all have a wonderful day. Soft gentle hugs,💜 Yvonne