Well. I’m the doctors. It’s for a procedure called an Ablasion. Basically a severing of nerves in my neck. Now that I’m a bit more focused after a very bad week I can talk about why I even started this blog. To journal my life coupled with informing people what a chronic pain person with severe depression goes through. MANY DOCTORS APPOINTMENTS.Well, this procedure will be done in the back of my neck. It’s not the most comfortable of procedures but I have a great doctor. When I’m in the surgery room face down like a massage table he & the nurses are chatting & laughing & I join in sometimes. The lower back is a bit easier to handle & will be done in 2 weeks. The neck is more painful. But I have to say it does help my headaches, and my neck & shoulder pain.Life as a chronic pain patient is difficult. Your in pain, but I am the type that puts on a “mask” so to speak. I can’t stand to just waa waa waa, even though I have on this forum, but I hate it. I never want to be difficult. So I mask my feelings a lot.I want people to know that being this way is not a choice. It happens to the best of us. I want those who are trying to understand the life a a chronic pain person is so not easy. It is hard. It is exhausting. So please, don’t make us feel more guilty then we already do. It makes things worse.So today’s pain level is a solid 7 1/2. Yesterday was a solid 10, but thankfully we were at an assembly & stayed in a hotel so I got to soak in the hot tub.Some may think “how can you function at a level 10 pain???? I’ll tell you. Pain is a part of our life. If I didn’t have pain I would think I was dead! 😶. A little humor. That is my mask. A joke here or there.Anyway when you have so much fibromyalgia, nerve damage & degenerative disc pain it is just part of everyday life & before you know it, a pain level of 6 or 7 is extremely welcoming. 😖Some people think we are lazy. Some think because we are overweight we would not have the pain problems, just lose weight. Some just plain judge & think your faking. We are not. I am not.With respects to weight, why would any person who suffers from chronic pain want to be overweight, feel even more pain from excess weight? We/I wouldn’t. But the effects of not so much pain meds because I personally no longer take them because they don’t work anymore. But all the other prescription meds are all weight gainers. I have been monitoring my weight & calorie intake for over a month with my app on my phone & my Fitbit watch. It is not as high as one would think. Even if I do fat free protein shakes that are meal replacements, eating more veggies, smaller portions & the only one that was working is a diabetic diet I did a year ago. So I am going to go back on that this week.The point is, those of us that suffer from fibro, we can’t help medication side effects. And for the record, skinny people get fibro also.I hope this enlightens people a little to life with chronic pain.Thanks for visiting…
I haven’t been reading too much lately, my mood is bad…sad…frustrated. It is so irritating to feel the way people think of me. To be judged by people for being physically ill, mentally ill. For not doing things their way or for speaking my mind in a peaceable way. For being judged at first glance.
I wish I was more like my husband or 2 boys where it doesn’t matter, they move on. But when its family it’s harder you start to wonder “is there something wrong with me?” (Besides being mentally & physically ill?) Well my closest & nearest & dearest tell me it’s not me but sometimes it feels like so many are against me. So many are so hurtful. I’m so forgettable & I used to be easy to use. I used to be a bubbly bright & generally optimistic person. If it was for my faith in our grand creator, I think I would have been a very horrible person because i would not have a moral compass. But right now my emotional battle wounds are raw & some reopened some brand new.
I want people out there to realize that no one is better or above another human being. Regardless of money, no money, race, orientation or anything. You bleed red like i do. You have feelings like i do. But you can cause a person who is battling so much in life to lose their life because of your selfish desire to hurt or cause them more pain.
Enough becomes enough. When do you not take it personally when a person snubs you to your face? When do you not take it personally when a person so obviously treats you bad? When do you not take it personally when people are passive aggressive towards you? When they use you & throw you away? When I say!!!
I’m so sick of family & “friends” being insincere. I’m a human being. I’m not mean, I used to give everyone the benefit of the doubt. Now I’m jaded. Now I can’t trust because of all the knives I’ve had to pull out of my back.
I know, I’m ranting, but it’s because I’m hurt, betrayed, devastated. If just one unsupportive hurtful judgemental person out there can read this & look differently or act differently or pull themselves out of a person’s life with honesty & integrity after reading the pain I have poured out here, it will be worth it to put my feelings out there. But if not, SHAME ON YOU!!! SHAME SHAME SHAME SHAME SHAME ON YOU. Treat people as you would like to be treated.
I respect a person more for being up front with me then being a lying fake. Ok. Rant over. Time to turn my blog to part 1 of why i think i developed depression/bipolar. Till then thanks for stopping by.
I’ve been wanting to write about an appointment I had a couple of years ago & see if anyone has experienced the same thing. If not, here is, a true story
I had a wonderful psychiatrist from 2008 to 2015. This doctor helped me thru a surgery I almost died in 2010. He kept up with me when we had to have a short stay at my brother’s house after my surgery to try to recuperate. When I thought I had to 5150 & told him I think he should put me in the hospital, he believed in me & for the most part I truly felt the most stable when I was under his care.
Well, the day before my appointment I called to confirm the time, he usually ran late so I just wanted to see what kind of window I had for the next day. (it didn’t usually matter when he ran late, he never rushed his patients and all his patients loved him & felt it was worth the wait.) Anyway, as I said I called to confirm & the receptionist told me that my doctor was no longer working there & I was going to see someone that would be there temporary untill they get someone permanent. Well just in case your wondering why my Doctor was terminated, was one reason, he was to commpationate. He was always running behind schedule & because some could not afford meds, whenever he had samples of something he prescribed, he would give them out. So, after being there 20+ years, a social worker who greatly disliked him started taking notes everyday on how long he spent with his patients. 15 minutes is the standard, he gave an hour, with 0 complaints from his patients. He was fired. I get into more of that later.
Anyway, I went into full nervous breakdown mode😭 not knowing what I was walking into, my poor husband tried consoling me telling me it will be ok, maybe whoever I would be seeing would be ok & i could get used to him/her. Bless my husbands heart trying to be optimistic, & believe me I appreciated & it💑! But…the next day came…
Nightmare ensued. I had my husband come in with me, & I had my medications I was told to bring in. Mind you I had been pretty stable working with my doctor & my meds. Well, my husband & I walked in, I just couldn’t go alone & I was still crying from the day before, I was greeted with a very unfriendly & quite hostile doctor. He first chastised me on my meds from my doctor as well as my pain doctor. I cried through the entire session and the doctor just seemed so very annoyed and told me dead he was basically confiscating my medications and that he would prescribe me something different.😖 I told him I had tried what he was tried to prescribe me and it ever not work. But he told me that between my pain meds and my anxiety medication that I’m addicted to pain meds & anxiety medication. He did not take away my pain meds, but my anxiety & the depression meds I was on. He gave me the new prescriptions & even my husband tried to explain that he does not know me, if he read my chart, he would see that these new meds💊 would not work, they have tried & failed. 😥
I saw my primary care physician thereafter & thank Our Grand Creator & Instructor that I’ve got the most wonderful primary care physician & she promptly put me back on my original medications as well as my anxiety meds. She was so surprised at how it all went down.
I thereafter spoke with my former pain management doctor who was upset that someone would suggest I was addicted under his care. I hardly took my pain meds because frankly they hardly worked & every month I would show him how many I took. So on top of that this office made sure you took random urine tests to see if you are abusing your meds. So I was not in any such danger.
Now, this was 2 years ago. It’s been a long road, I’ve seen so many in between as I said before, but never seen that 1 doctor again. But 6 months ago I went in to see a new Nurse Practitioner, sigh… I explained how the constant change in this office is killing me since my original doctor left. I got another psychiatrist after, but she took a temporary leave to work at another department where she was needed. We spoke & she told me go back to the office, I’ll get you an appointment & when I return I’ll resume seeing you again. Well, this Nurse Practitioner was ok. But when I explained my bad experience so he would be up to speed on my past. He curtly told me that he would not speak ill of the dead…huh???? I told him what do you mean, he said that that particular psychiatrist had passed away. Now don’t get me wrong, I explained, I’d wish that on no one nor would I be happy about it. But I am telling you my truth. My experience. I’m not trying to speak I’ll of the dead. I’m just telling you he was not compassionate towards ME. Well I already could see by his mannerisms this was not a good fit.🤐 I left & never been back until a couple of days ago when I found out my 2nd wonderful psychiatrist was back.
I am sad for the other doctor & hope he was more compassionate with others but I didn’t know him personally & may he rest in peace.
I’m sharing this not to bash him, but hoping other doctors who may read my blog will learn “bedside/sit side” manner. That someone having a nervous breakdown before your eyes you may not want to yell at them & tell them they are a drug addict in the first 15 minutes of meeting you🙄. We, the ones with the Invisible Mental Illnesses are sometimes fragile, sometimes our strength comes out & we are strong. We have good days & bad days. Be kind, be patient, because we don’t want or choose to live this way.
Thanks for taking time to read this super long story.🤓
Well, I just finished an assessment to go see a psychiatrist I used to see 2 years ago. She left but now she’s back and I really like her. But in order to see her I had to go through a full assessment to make sure that I qualify for the services.
Well, I have to say it was quite difficult. Reliving everything that has brought me to where I am today, the depression, PTSD, fibromyalgia, nerve damage and anxiety.
Bringing up all those things has caused me to feel very low today and a lot of anxiety. But I know I have to learn to get past a lot of things that have happened to me in my life.
But I had no concerns as to whether or not I’d be able to see my former doctor as she had already allowed me to get an appointment for next week I just had to go through the formality today. Since I last saw her a lot has happened in my life and apparently my PTSD has definitely gotten worse. It has triggered some serious depression. Something I already knew but to hear them say it I don’t know it seems kind of strange and hurtful. Get it’s a relief because I know I’m not faking. I have an invisible illness. Actually I have several invisible illnesses. I wanna get deeper on my blog here so I think the next time I may wanna talk about betrayal.
Anyway the spiritual side of me is coming out and I’m your name to grab my Bible and really delve into the message our Grand Creator gives us. Looking into the beautiful Psalms, or reading accounts of bravery like Jonah. Although he ran in fear & ended up in the belly of a fish, he eventually was out of the fish & completed the direction God gave him.
I feel like I am in the belly of the fish metaphorically of course. I feel like I have run away from so many problems in life. Although I didn’t have direction from God like Jonah did to send an urgent message to people in a town that was going to be destroyed, I know when I read my bible I do in fact have a mission & if I can pull myself out of this metaphoric fish, i can find bravery. I can find my true self. I can follow the direction that is meant for me…
Thanks for stopping by.💜🙏💝
Why in the world when your in a fibro flare up you feel the domino effect? What I mean is first there’s pain, then there’s more pain, then there’s please don’t bother to get me out of bed pain. Then you have so much pain your grateful it knocks you out. I feel asleep good from Saturday to Monday morning. In between it all is the guilt of not living life & bringing people around you down. But yet they love & support you, at least that’s what happens with my case, but it does not take away the frustration & depression that comes with fibromyalgia. My bipolar rears it’s ugly head. Then I shop in between. I am fortunate my hubby has not taken my credit cards away! Lol. Bless his heart. He believes in me.
I will it feels good to have someone to believe in you. It feels nice to have support. But these fibro flare ups are so brutal. Do any of you all suffer from these same symptoms? Does life stop in it’s track for you?
On a brighter note I seen my pain doctor today, uneventful as he does not deal with fibromyalgia. But assist with my degenerative disc disorder. So I went in to get an appointment for what’s call Ablasions. He severs nerves in my lower back & my neck to assist me with a measure of relief. I get chronic migraines as well so this has helped.
Wow, it sounds like I’m a hot mess! Well I kinda am!! But on good days I love life. Today was an ok day. Spent with my honey & service dog Belle. Had a beautiful dinner with my husband, when we cam home my brother in law brought an amazing dish of Chile Japoniese. Very spicy with pork chops. It was great. I made some buttery popcorn for us & it was actually a lovely evening. I just wanted to share my weekend with you. I hope to have a good day tomorrow, I am a glass half full, but unfortunately with bipolar, it’s hit & miss. So I’m a bit proud of myself that I didn’t let the depression get to me too badly. Normally I go through some horrible down time. I’m still in pain but its bearable today.
Question. Does anyone have memory problems? My memory is terrible & of course I forgot which medication or if it’s a medication. I’m already in bed, it’s 12:22 a.m. I’m tucked in like a bug in a rug. Anyway , thanks for stopping by.🤗
Well, my feelings have been a mixed bag of nuts. I just haven’t been feeling good lately. Physically, mentally I feel just feel ick. Bipolar is annoying. I’m on a low for the last couple days.
When I have feelings like this, I feel a measure of guilt. My husband is so amazingly patient, but I feel bad when I have down days. I didn’t feel up to shopping so he went for us. These headaches are annoying too. (Nice side effects from meds) But I don’t want to be a debbie downer. It also didn’t help that this fibro flare up is sticking around. Where it’s been really centering in my right knee. I had an x-ray & nothing wrong, just all part of my fibromyalgia.
Some people don’t understand how Depression & Fibromyalgia or any other Invisible Illnesses can put your life in a dead stop. So anyone reading this who is reading to get understanding about it. Be kind, be patient.
My husband is such a sweetie & told me to do nothing today. So, nothing it is. Just me & my fur baby Belle.
And my fellow sufferers, even though I’m having a rough day, please listen to the advise my honey gave me, it’s ok. Be kind to yourself & be ok to have a rest & relax.
I hate days like this. Ok, solution…push myself harder. When I get out I do much better. I have to have my time scheduled I noticed.
I recently started crafting. I started making some cute name badges, so with jewels & some with buttons including a lanyard. I’ll show a picture soon. I don’t feel like getting my stuff out. But some are going to be gifts & some are going to be for sale. I’ll also be doing something with wine bottles. I would love to learn calligraphy.
Anyway, me & Belle are listening to my husband & relaxing. Watching junk TV shows. Being mindless. Blogging about my life has been very therapeutic & those who have reached out just to follow me & some comments have been an amazingly positive journey. Thank you all.
Tomorrow we will be hanging with some friends. I think I’ll do good.
Anyway thanks for being part of my journey.
Here’s a couple of pics of me on recent good days with Bellygirl 🐶❤ & my son Aaron 😎